Did I get your attention? :) Since I’m not one for titles that tease but don’t deliver, I guess I’d better get busy explaining myself…
I started blogging yesterday. It has been on my mind for some time, but I
haven’t been able to bring it to fruition until now. I think my past attempts quickly fizzled
because I didn’t feel like I had a particular focus or topic – a mission
statement, per se. And, with hundreds of
thousands (millions?) of blogs out there, I didn’t want to contribute to the Seinfeld-esque
chatter: funny information about nothing
in particular. Goodness knows we already
have enough of that!
So I put the idea of blogging
on the back burner, and continued to ponder how I might finally jump into the
vast cyber pool of writing. And, in the
meantime, I continued writing about my experiences raising a child with special
needs. I know there are a few good books
out there for NICU parents from a medical perspective (my recommendations may
be another post altogether), but not a lot that address the internal,
emotional, and spiritual process of that experience.
For me, the writing was
purely cathartic. We’ve been through so
many challenges with kiddo’s especially-early, completely unexpected delivery
and the resulting challenges that I HAD to get it out somehow. And while talk therapy, lots of massage and
bodywork and a healthy addiction to tea have helped greatly, I still needed an
outlet. Make that a private outlet.
I know that might surprise
some of you. If you know me, you’re
already aware of how verbal I am…sometimes, to my own detriment. (I should probably have a iPad cover that
says “Insert Foot in Mouth.” Lord knows
I do it enough!) And, while I needed to
get some of the emotions off my chest, I also needed to know that I was doing it
in a manner that would both serve me and remain private at the same time.
But then I started running
into people (in real life as well as online) that have similar stories, or have
experienced different situations with similar heartaches, and I started opening
up more about how difficult it is to raise a micro-preemie. And people started responding with their
stories and their resources and it gave me hope that maybe I could, in fact,
contribute in a positive way.
Insert a few, well-timed
suggestions from my mentor, boss and friend (I’ll call her “S”) and the wheels
were turning. But – oh, my goodness –
that meant I’d have to strip myself down to my rawest, realest place if I
wanted to connect. And that thought has
scared the shit out of me for a long time.
Have you ever had one of
those dreams where you’re naked in front of a crowd? Yeah, that one. Me, too!
Historically, I’ve had this dream when I’m anxious about “performing” in
some manner --- getting in front of a new class of students, playing my
trombone or handbells at a concert, or giving some type of a speech. In my dream, I’m usually the last to realize
I’m standing there, butt-naked, while everyone is laughing at me and pointing
out my flaws. And I have a lot of flaws.
The idea of blogging for me
parallels that dream. I’ve talked myself
out of it countless times because of all the “What if…?” questions running
through my head. What if I start blogging
and run out of things to write about?
(Yeah, even this “verbal” gal has those fears.) What if I write something and someone is
really cruel – horribly mean, even – and tells me to “f” off? What if I share something personal and it
becomes fodder for someone else to lampoon my less-than-perfect parenting
efforts? What if, what if, what if???
Again, insert a few more,
well-placed suggestions from “S” (she’s really good at planting/watering seeds
of thought), and a lunch to flesh it all out and, suddenly, I actually thought
I could do it. I still was pretty
hesitant, mind you, but I started to understand how much this experience we’ve
had because of kiddo’s presence in our life is a global thing.
And yesterday was the final
straw for me. I just couldn’t continue
to keep it private anymore. I had come
home from kiddo’s neuro appointment broken-hearted and in shock and needed to
get paperwork done. But when I sat down
to write student evaluations, I couldn’t do it.
Instead, my fingers started typing what I eventually ended up
posting. And, as vulnerable as I felt, I
was so relieved!
Part of me hesitated to post
it, but only for a second. As I held my
finger over the “enter” key, I took a deep breath and hit it – then immediately
thought, “Oh, my God! What the hell have
I just done?!” Just like when I first
found out I was pregnant with kiddo, I knew there was no going back.
Thankfully, “S” called last
night after reading my blog to check in and offer her support. I referenced the anxiety dream and told her I
felt like I was standing naked in front of the whole school again and she
laughed and said something to the effect of, “Honey, you just stripped naked in
front of the whole world!” After a
moment of panic (and some reminders from her to take lots of deep breaths), I
was able to hear her words about how, by being willing to put myself out there,
raw and uncensored, sharing some of my deepest, most vulnerable, authentic
thoughts, I give others permission to do the same.
And, with the whole world
watching – just like the Olympics we’ve been enjoying for the past week – I’m not sure just how far-reaching my words
might be. My hope – the biggest,
strongest wish I could ever imagine – is that someone, somewhere knows of
someone or something that can help us navigate these challenges with our
beloved kiddo, and increase the quality of our life together.
I’ve already heard from so
many of you that I’m humbled. I’ve made
some new connections and resumed some old ones in just a matter of hours, and I
feel like the light of hope in my torch is flickering just a little brighter
today. And I hope you continue to follow
my blog. By your following, “liking,”
sharing and commenting on it, the potential for it to reach more and more
people grows exponentially. And I’m praying
the global nature of the internet will help us find (or be found by) the
person(s) who may be able to help us in our quest for better options for kiddo.
And, as if that’s not enough,
I’m celebrating feeling free today. For
the first time in a long time, I’m not feeling uncertain or ashamed and I’m
standing naked in front of the whole world.
And it feels fantastic! It’s my
Olympics, and I just took the gold!
Julie, I'm honored to be your friend. Thanks for sharing this journey with us. Thinking of you.
ReplyDeleteThanks for your support, Sue!
DeleteJulie, thanks for sharing your thoughts and burdens. I think of you all often. No words of wisdom, no platitudes... just thoughts and prayers of support.
ReplyDeleteWe welcome all good thoughts and prayers you care to send our way. Thank you for keeping us in mind.
Delete